Published:1 May 2004
Format:Paperback 224 pp
Category:Child & Adolescent Health, Parenting & Childcare
ISBN:9781876451547
Price:$26.95

Lessons From My Child

Parents' experiences of life with a disabled child

Bernadette Thomas, Cindy Dowling, Neil Nicoll

Every expectant parent dreams of having a healthy, ‘perfect’ baby. But for some, those expectations are shattered forever with the arrival of a disabled child. Long-cherished hopes must now be set aside as these parents begin to deal with a new, unwelcome reality and take the first tentative steps on a long and challenging life journey. Lessons From My Child is a collection of stories gathered from parents of special-needs children from around the world. In their own words, these parents speak openly and honestly about raising a child with intellectual or physical disabilities – the sleepless nights, the long periods of sadness, the tiny triumphs and the ongoing battle to ensure that their child assumes his or her rightful place in the world. The stories are grouped into chapters that reflect the main stages of many parents’ journeys as they move from grief, denial and anger to a point where they can accept their situation, and perhaps see their child's disability as embodying a profound life lesson. Each chapter begins with an expert psychological commentary on what parents may be experiencing at that stage. These accounts from parents allow rare insights into the challenges of their world and reveal the extraordinary rollercoaster of emotions many face daily. What emerges is a testament to human determination and a powerful reaffirmation of the strength of love.

'Lessons From My Child is a must-read book for anyone who knows and loves someone with special needs – but, more importantly, for the people that make up the communities our special families live in. It will give comfort to those who live with and love a child with a disability as it documents and exposes the range of highs and lows that is part of the journey. It tells it as it is, with love, humour and a refreshing honesty. Judy Brewer Fischer, Founder Autism Aspergers Advocacy Australia (A4), Chair, National Family Carers Voice.

 

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Bernadette Thomas

Bernadette Thomas, a publisher who works internationally and divides her time between Sydney and Auckland, has a son with Down syndrome. ‘This book is to let parents of children with disabilities know that even though there are highs and lows, at the end of the day they are our kids and we love them regardless.’

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Cindy Dowling

Cindy Dowling is a freelance journalist and mother of an autistic child, who lives in Sydney. ‘This book gives parents of disabled children a chance to share important messages with the wider world.’

 

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Neil Nicoll

Neil Nicoll, a psychologist in private practice, specialises in developmental disorders such as autism spectrum disorder. He lives in Sydney. ‘Through this book I hope to pass on some of what I have learnt over the past twenty years to parents of children with special needs and to the professionals assisting them.’

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